“Now, a few words on looking for things. When you
go looking for something specific, your chances of finding it are very bad.
Because of all the things in the world, you're only looking for one of them.
When you go looking for anything at all, your chance-1”
FYI, if you haven't seen the above referenced movie, please do. It is one of
only two movies that I can tolerate Ben Stiller in. But as always, I digress.
On with the show..
My friend Jeff, whom I've known since we were about 7, once told me that he had
a philosophy about movies. You see, I've been a cinephile since I first sat in
that dark theater and watched Darth take down Obi Wan and learned how fast Han
Solo did the Kessel Run. As the years went on, movies became a safe zone for
me. When I was homesick living in Vegas, when I was sad over the infidelity or
even lack of a significant other even when I had nowhere to live but my car,
the movies were always there. They made me laugh, cry, scream at the screen,
wonder why I just spent two hours watching what I did and other emotions that
were a part of my life. So of course, it was my dream job to end up working in
a video store and then a few years after that, I started to combine my other
passion, writing and ended being a film critic for about 4-5 years.
I did this while I was living in Kansas City and since that where Jeff lives
too, we did have occasion to go to the movies together. It was during our
viewing of the polarizing Blair Witch Project that I noticed that there was a
method to his madness when it came to his way judging films. He did not like
the film, namely because it made him nauseous with all the camera work and the
enigmatic ending. He said, “there was nothing positive or redeeming about it”.
I explained that not all movies do and he, at least back then, had that as a
deal breaker. Myself on the other hand looked for redeeming qualities in films
not because it would make me decide whether I liked it or not but more I like
to find reasons for someone else to like it even if no one else does. Believe
me, this was difficult sometimes. Even the Big Lebowski (which the masses seem
to have a problem with my not liking) and Napoleon Dynamite had at least one
scene that I smirked at or recall.
The point of these first two paragraphs; there is good in most things if you
look for it and in the past 4 years, with my limitations, I have been looking
to find the positives in life that I may have missed before and trust me. It’s
difficult. This disease sucks. It is painful, it is unpredictable, it makes no
damn sense. It makes me at any time sad, angry and frustrated. It makes me want
to scream or curl up in a little ball and cry or even briefly do the “why me”
(even though I basically know). It’s okay to do these things; its cathartic, we
should all do it once and a while. But there is a difference now from when I
did this 4 years ago. I am still sick of the constant pain, the nausea, the
medication etc. but now, my focus and perspective have changed.
You see the pancreatitis may not allow me to do certain things, but it cannot
control or stop me from doing everything. Believe me though, this little nugget
of wisdom took a bit to retain and accept but now that I have, I have spent
time trying to find out what good can come of an enigmatic chronic pain illness
and one day I realized that I was, as the quote above infers, looking for one thing
in a sea of multitudes. Instead, I stopped looking and subsequently found what
I wasn't looking for.
I've always been a compassionate, tolerant, patient person (thanks Mom). I've
been that person (in retail and customer service) who “dealt” with that
impossible customer/person who no one else could deal with. Why? Because I put
myself in their shoes or just listened to them. But thus, as always, I digress.
I was fortunate enough to become a part of an organization whose primary goals
are to educate, raise awareness and help out people with this disease I have; l
the non-profit organization the National
Chronic Pancreatitis Support Network or NCPSN for short (check us out,
like us, etc., you'll feel better that you did). You probably recognize us
through our postings on our page and our fund-raising Through this awesome
group of people who founded it and the subsequent people I've met because of
it, I feel like I found what my, new, purpose was in life.
If I have to have and deal with this every day, and I seem to be coping with
and accepting it as I progress through it, why not help people who haven't
quite reached that point yet. You see for the few who don't know yet, this is
permanent. It does not heal. It does not go away and, according to most of
doctors (some more competent than others) it will never get better and will
only get worse if you do not take care of it. These are why I am here. I am 56
days short of 4 years being diagnosed with it so I think I have gleaned a bit
of knowledge on the matter and instead of being selfish and just keeping the
“methods to my madness” of making it through each day, I figured I can take all
of this information about what, where, why etc., do those who are not as aware
as I am, do not understand as much as I do or even are not coping with it as
well as I do. I have had 4 different people now, going through different levels
and stages of the illness and helped them by educating and answering, to the
best of my knowledge, the enigmatic, confusing and frustrating symptoms of it
Guess what Biff, you can stop me from doing a lot of things (sit for a long
time, stand for a long time, walk for a long time, drink a toast on New Year’s
Eve, eat certain things, not have to take pills every 3 hours, my doctors
knowing me so well that they recognize my voice) but you cannot stop me from
writing. You cannot stop me taking my intellect and my ability to use words
along with my compassion and patience that I've learned throughout the years
and turn it into something that makes me feel important, makes me feel like I
have a purpose and makes me feel like I am making a difference in at least one person’s
life because of the pain and crap I deal with every day. Thank you, Jeff, for
forcing me to look for the good things, we may disagree on definitions of what
makes a film redeemable but at least you made me start looking for them.
If you try hard enough and look deep enough, you may be able to find what your
purpose is as well. If you have children, that becomes kind of obvious but even
above and beyond that. It doesn’t have to be anything grandiose or large or
anything and I'm not even really talking about “paying it forward. There are so
many bad things in this world, leaps and bounds worse than what I have and go
through daily. But somewhere, someway, somehow, if you look deep enough, you
can find even a sliver of a silver lining. Sometimes we don't like how we got
someplace but once we get there and realize we can make the best of it, the
silver linings come into view. If life has given you a bunch of lemons, don't
just make lemonade, make a lemon meringue pie to go with it. Plant a lemon tree
to create more lemons to give others and help them see that we are defined not
what we have, but by who we are and what our legacy may be. What will people
remember about you? I want to be remembered for my intellect, my ability to use
words, my ability to make people laugh but mostly, my ability to make a
difference. I have found my way; I will help anyone deal with this hell to
the best of my abilities. If I can bring even a little glass of lemonade to a
thirsty person.
Your limitations are only as limiting as you let them be. This illness doesn't
define you, but it becomes as much a part of you as hair color and the depth of
your voice. It’s not always what you have, it’s how you use what you do. If
your body can't do something, use your mind, use your heart and then by not
looking specifically for a way to make a difference, you will. Everybody has it
in them to make a difference; the key is finding, accepting and then doing it.
will feel a sense of success. Trust me because deep down in places you don’t
talk about at parties, you know I'm right.
1-Daryl Zero (Bill Pullman), Zero
Effect, (1998), written and directed by Jake Kasdan
8.5.7